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In Control of my Fibro: Symptoms tracker, pacing advice and notebook for Fibromyalgia warriors

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While a few healthcare professionals reported making a ‘positive’ diagnosis in people with fibromyalgia - seeing it as an opportunity to pause, reset and pursue appropriate management strategies, others considered a fibromyalgia diagnosis of limited utility. Psychological approaches to pain management try to address the emotional effects of your pain and the things that can make your pain worse.

Our Love Your Liver roadshow travels the UK to help people check on their liver health, and take control of improving it. Your doctor may only recommend drug treatment once you've tried options such as exercise, psychological therapy or acupuncture. Services aren’t able to be responsive to acute flare ups and have limited capacity to provide ongoing support whilst individuals develop their self-management skills. We see patients in rheumatology where the needs of the patients would be best met in a service with dedicated psychology.There have also been signs of increased nerve growth factor and decreased levels of serotonin in fibromyalgia patients. Fibro patients often need things like long term physiotherapy and most clinics only provide 6 sessions which barely scratches the surface with such a complex disease. The UK’s “Getting It Right First Time” programme recommends that management of people with fibromyalgia should centre on primary care.

However, in addition to those elements, some of the guidance documents also mentioned medication as playing a part in a multi-disciplinary approach to managing chronic pain. To help identify potential case study sites, participants were invited to enter the address / postcode of their NHS service or practice (survey A) and the non-NHS organisation or provider they accessed to help manage their condition (survey B).

a year ago led to fibromyalgia generally being dealt with by GPs (no further secondary care nor multi-component programmes offered). A] lack of skill or confidence in making a diagnosis in primary care means people are not given early advice or information about how to manage their condition.

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